

Alyssia was diagnosed with Metastatic Alveolar fusion positive Rhabdomyosarcoma in February 2021 at Great Ormand Street Hospital only 7 months old.
At the time of diagnosis she was given 6-18 months.
Her treatment journey started with 9 intense rounds of chemotherapy which she handled amazingly and always with a smile and a giggle. Regular MRI scans were showing the tumours were shrinking and by her last round of chemotherapy the tumour was minimal, which meant she could be put onto maintenance. This included very small amounts of chemo every few weeks with hardly any side effects.
After her latest MRI scan in April 2023, we had the news we never thought we would receive Alyssia was in remission, the cancer wasn’t detected. The rest of 2023 Alyssia lived her life to the fullest, she started nursery, had several holidays, and plenty of memorable days out. She started to really come out of her shell and was loving life.
January 2024 after battling COVID we believed Alyssia to have a chest infection unfortunately this wasn’t the case. X-rays and CT scans discovered the cancer had returned. This cruel cancer had returned between MRI scans so aggressively that it was suffocating her airways.
Jennie and Michael lost Alyssia, their ‘Lissy bear’, in January 2024. She was 3 and half years old.
Her family would like to support Sarcoma UK to continue to honour Alyssia's memory. Thank you
Make a donation to the Alyssia Rose Group Fund
Open an online fundraising page for the Alyssia Rose Group Fund

