Ewing sarcoma is a very rare type of bone cancer that forms as a tumour in the bone or soft tissue. Tom's symptoms were so minor to such as an achy back and night sweats and he was turned away by hospitals with sports injuries a few times. Tom was such a brave and inspirational person through his journey and he always wanted to help others with the same condition, says his sister, Katie.

Tom passing has left a massive void in all his family and friends lives and he'll never be forgotten.

The family have taken on inflatable 5K obstacle courses, run the Great South 5K as a huge team and raised funds through birthday fundraisers, ensuring Tom leaves a positive and lasting legacy that will change the lives of people affected by sarcoma.